Visitor contribution

Fundraiser to Help Baby Sara & Tara

by Tara gee
(CA)

This is a true story and a true tearjerker. I'm a mom of 2 children, my two twin daughters where born with a rare medical condition called syringomyelia.

Syringomyelia is a chronic disorder that involves the spinal cord. The condition occurs when cerebrospinal fluid enters the interior of the spinal cord. This is normally found outside of the spinal cord and brain.

My community helped me out with my two daugther medical bills. They had an AWESOME fundraiser for me and my family. I could not have asked for anything more after this. I didn't help at all with the fundraiser, it was a complete surprise to me and my family.

They had clowns painting face for $1.00 each. The local bakery sold 10 different pie sices for $5.00 each. They had a kid water slid for $2.00 for 1 child to ride. They had a contest who could eat the most buffalo wings in one sitting and the winner would have to pay exactly what it is that they ate. If you ate 15 buffalo wings, then you would have to give $15 for my daughters. John Baker won and he ate a total of 74 wings. I thanked him later that evening. We had the kids sing there favorite song on a karaoke machine and whomever finished first had to pay .50 cents towards our medical bills. But everybody helped out in some way and I am forever thankful of all.

Comments for
Fundraiser to Help Baby Sara & Tara

Average Rating starstarstarstarstar

Click here to add your own comments

Jan 24, 2009
Rating
starstarstarstarstar
Other Support Needs
by: Dick Hellner

Tara, how wonderful for you and your daughters that you have such loving and generous neighbors and friends. It's always heartwarming to hear of these selfless gestures of caring.

With two daughters with syringomyelia, there are, of course, many challenges that you are facing and will continue as your girls grow. If we can assist you in any way, I hope you will call on us. If we don't have a specific program to help you, we'll work hard to identify a resource that might be able to help.

Our main support programs include face-t-face and telephone support groups for patients, parents and other caregivers; an information and referral hotline (903-236-7079), a comprehensive website (http://www.asap.org) that includes online discussions with other parents, etc., a bi-monthly newsletter, an annual medical and scientific conference and more than ten thousand members that you can access for support and advice. We also support state and national legislation that benefits our community and we fund promising biomedical research projects.

If you would like to learn more please check out our website, call our hotline or contact me.

Sincere best wishes,
Dick Hellner
American Syringomyelia Alliance Project
404-889-2055
dick_hellner@asap.org

Click here to add your own comments

Join in and write your own page! It's easy to do. How?
Simply click here to return to Other Fundraiser